Tag

Vasculitis
Raise more awareness of Behcet’s Disease! May 20th is Behcet’s Awareness Day. Behcet’s Disease is one of the rare diseases in US that is characterized by blood vessel inflammation throughout the body.
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Looking back at my experience during a medical conference, I remember a wonderful lady with a very specific disease. Her name was Emily (not the real name for privacy) and the disease is called Behcet’s Disease.
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Recent Articles

Be real and respect the patient
June 19, 2020
Cleaner Environment, Healthier Life – Cleaning San Diego’s Manzanita Canyon
July 9, 2016
Kana’s Story: Vasculitis Patient Conference
May 24, 2016

Submit Your Story

Rare Is Special aims to connect people with rare disease with others with the same disease as well as researchers and doctors working in the field. One way to do so is by publishing people’s stories and experiences. By contributing your story, you will be able to reach and inspire others with the same disease and motivate researchers and scientist who do work in the same rare disease.

If you are interested in submitting your story, please send us your story at contact@rareisspecial.com