When I was nursing student, I met a 50 year old beautiful lady who had ALS. She was waiting for me, I noticed a slight movement of her lips as her way of smiling at me every morning...
Raise more awareness of Behcet’s Disease! May 20th is Behcet’s Awareness Day. Behcet’s Disease is one of the rare diseases in US that is characterized by blood vessel inflammation throughout the body.
Rare Is Special volunteered in cleaning drive organized by Project Helping led by Ali Muhammad, a Marine and the "Phoenix Leader" at Project Helping. Volunteers gathered 225 pounds of trash and cleaned 12 graffiti from the 1-mile-long Manzanita...
Looking back at my experience during a medical conference, I remember a wonderful lady with a very specific disease. Her name was Emily (not the real name for privacy) and the disease is called Behcet’s Disease.
Forbes.com publishes an article featuring “SBP Rare Disease Day Symposium: Human Glycosylation Disorders“, authored by Dr. Henry Miller from Stanford University. Dr. Miller was one of the speakers at the symposium.
Rare Is Special aims to connect people with rare disease with others with the same disease as well as researchers and doctors working in the field. One way to do so is by publishing people’s stories and experiences. By contributing your story, you will be able to reach and inspire others with the same disease and motivate researchers and scientist who do work in the same rare disease.
If you are interested in submitting your story, please send us your story at contact@rareisspecial.com
