We are committed to identifying unmet needs in the area rare diseases by promoting networking, collaboration, event organization, exchange of ideas and publication of special stories and other relevant information.
From identification of problems to developing the solutions, we are directly engaged with “special people” who are tirelessly working day and night to find solutions to difficulties faced by the rare disease patients.
Our objective is to develop innovative products and services, that can add significant value to the lives of patients and other special persons from the area of rare diseases. We look forward to hearing your story and feedback.
Rare Is Special publishes disease research related information & stories of special people, organizes & participate in events, publishes books and creates tools for networking & collaboration.
Rare Is Special is developing a robust platform disease related information sharing between rare disease patients, patient families, scientists, physicians, advocacy groups and other members of public.
Our focus is facilitation for research and discovery to find cures and improve healthcare for rare disease patients.
We have participated in multiple rare disease events in past and contributed funds and human resources.
We publish news, short stories, interviews, illustrations, books, etc. created by rare disease patients or related people. You can send your submission directly to us at contact@rareisspecial.com
