Rare Is Special is a social enterprise that is developing tools and platform to connect a variety of “special people” (patients, families, physicians, scientists, advocacy groups, life science companies, policy makers and other members of public) who are committed in finding the treatments of rare diseases.
Although individual diseases might be considered as “Rare Diseases”, but people suffering from these rare diseases are not rare at all.
Many of rare disease patients will never see cure in their lifetime …
UNLESS WE ALL WORK TOGETHER & EXPEDITE THE DRUG DISCOVERY & TREATMENT.
We will be happy to get your feedback and suggestions.