Rare Is Special is a social enterprise that is developing tools and platform to connect a variety of “special people” (patients, families, physicians, scientists, advocacy groups, life science companies, policy makers and other members of public) who are committed in finding the treatments of rare diseases.
Although individual diseases might be considered as “Rare Diseases”, but people suffering from these rare diseases are not rare at all.
Many of rare disease patients will never see cure in their lifetime …
UNLESS WE ALL WORK TOGETHER & EXPEDITE THE DRUG DISCOVERY & TREATMENT.
Rare Diseases affecting mainly heart, blood vessels (arteries & veins) and blood cells.
Learn MoreRare Diseases affecting thorax, lungs and other respiratory system organs and tissues.
Learn MoreCheck all rare diseases categorized according to different organ systems.
Learn MoreWe will be happy to get your feedback and suggestions.
E-mail: contact@rareisspecial.com
If you are interested in submitting your story, please send us your story at contact@rareisspecial.com
Submission GuidelinesRare Is Special facilitates information sharing and collaboration through our online platform. Partner with us!
VolunteerRare Is Special platform is developing multiple tools at this time. We look forward to your feedback.
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